Wednesday, March 16, 2016

A Prayer Request

I have a post in the works, but in the meantime, I have an urgent prayer request. My sweet little 4 year old niece Claire was born with Apert Syndrome. It's pretty rare, and among some other physical problems (such as her fingers being fused together, as well as her toes at birth), her skull plates fused together before she was born. She has been through multiple surgeries for untangling her little hands and feet, ear tubes, and skull surgeries. She learned to crawl in casts. She is a trooper and hilarious and EVERYONE loves her to pieces. Recently, she's been having bad headaches, and originally thought to be adenoids, just today they've learned that it's much more severe, this is pressure building up and they missed it because she doesn't have any of the other symptoms. She needs surgery ASAP, no more than 3-4 weeks, they just need to assemble the team to do it. This surgery is very difficult, dangerous and the older the patient the tougher it goes. Claire's baby sister was inexplicably stillborn at 32 weeks last August. The threat of death in this surgery is made even more real after experiencing that tragedy. Would all you kind readers lift Claire and her family (My bother D., his wife J. and nephew D.jr. (5) ) up in prayer? They have been tested over and over and come forth as gold, but that doesn't make it any easier. Specifically for peace, healing, peace, finances, and peace. Yes I said peace 3 times. J.'s family, though loving and close, does not know Jesus and can make things a little more stressful even though they mean well.
Thank-you so much Sweet Readers, I'll keep you updated.


The pressure is in her optic nerve and they will have to perform a cranial vault. This was done once before and they were;t expecting to need to do another.


  1. Oh my goodness, how scary! This tugs on my heart so much, and I am glad you posted about it. I will definitely pray for little Claire and for the whole family. Please keep us updated!

  2. Not sure how late I am arriving at this post as I've been away from the computer for a few days for a funeral. Praying for this sweet girl and her family and peace, peace, peace. Please keep us updated!

    1. You weren't late at all, thank you for praying! <3